Year/age |
What
happened that year |
1962 |
Born on
the15th April 1962 Sue suffered with failure to thrive. She was
born underweight though she was fed around the clock Sue was diagnosed with
Cystic Fibrosis on 25th July 1962. Sue was
put on enzymes, electolites and special oil for cooking (MCT oil) and also
antibiotics for next 12 months, which gave her black teeth. |
1963 1 |
|
1964 2 |
On the
16th of April 1964, her sister Jane was born. The day her sister
came home, sue came down with a severe chest infection and was admitted to
hospital and treated with antibiotics and physio. This was her first stint in
hospital since diagnosis and started on morning and night nebulisers. |
1965 3 |
|
1966 4 |
In 1966
she attended afternoon sessions at Clayton Pre-school, which she enjoyed
immensely just being there. Many years latter her pre-school teacher remember
Sue for her butterfly like hands, she thought Sue was like a butterfly. |
1967 5 |
In 1967
Sue started half-days at Clayton North Primary School. She was not expected to
live to reach her 5th birthday. |
1968 6 |
|
1969 7 |
|
1970 8 |
|
1971 9 |
|
1972 10 |
|
1973 11 |
|
1974 12 |
|
1975 13 |
|
1976 14 |
She
wrote her first letter to press when she was 14 years old. |
1977 15 |
|
1978 16 |
Sue does a Secretarial Course at
Stott's Secretarial College at Dandenong. |
1979 17 |
Sue started her HSC at Cleeland High
School in Dandenong. |
1980 18 |
Sue
finished her HSC. |
1981 19 |
Sue studies Philosophy at Monash
University in Clayton. She had to give up studying at Uni due to the smoke
barrier becoming larger and the smoke caused exacerbations and her lung
infection kept going out of control. She started oxygen at 19 – she used
whenever she slept and used it constantly during exacerbations. |
1982 20 |
|
1983 21 |
|
1984 22 |
|
1985 23 |
|
1986 24 |
Sue’s
left lung kept collapsing and exposure to tobacco smoke gave her severe
asthma attacks that became life threatening from the strain. She had numerous
surgical interventions to save her life. She had a pleurodesis to stick her
left lung up. Then the right side took up collapsing! Her weight dropped
around 34 kilograms. Her doctor told her she was at the point of no return
and there was no hope. From his data and his experience, it appeared as such.
However, she deeply desired to live. |
1987 25 |
|
1988 26 |
|
1989 27 |
Sue moved to Adelaide to live an independent self-sufficient life. She
decided to live in Adelaide because it had cleaner air than her home in
Melbourne. She met Steven Cavallo and they
shared many ideas
over many meeting. She went on a blind date with Shane Sody in December 1989. |
1990 28 |
|
1991 29 |
|
1992 30 |
Accepted onto the transplant waiting list on Christmas Eve. She
returned to SA to clear up loose ends. Her lung was so fragile then, that it
collapsed from perfume worn by a person. She had an intercostals catheter put
in. |
1993 31 |
Sue does an Open Learning Course
(Accounting and Psychology) through Monash University. |
1994 32 |
In May, Sue received the gift of life in the shape of a bi-lateral
single lung transplant at the Alfred Hospital. In October, Sue went to Europe and visited relatives in Portsmouth. She said, “It was mind-blowing to be able to come here and see them. They were just names and stories you grow up with.” “I am meeting relatives I have never seen before and it’s wonderful. I have had a lifetime of illness and this is the first time I have been able o come to England.” “My parents were from here originally so it was fantastic to be able to return to my roots.” She also traveled to Paris to deliver a paper to the Ninth World Conference on Tobacco & health at this time.” “Every child I grew up with who had cystic fibrosis has died and parental smoking was a factor in them suffering more and dying sooner.” Also in October, she discovers that the transplanted Lungs that she has are allergic (asthma) to cigarette smoke. |
1995 33 |
Sue does a bit of study - Economics -
at Flinders University |
1996 34 |
Sue does
a HETA course in Small Business and also does a course in Certificate Level 4
in Applied Design (Interactive Multimedia) at Torrens Valley Institute of
TAFE. Sue
started Intramedia Design at 77a Rose Terrace, Wayville with Brian Wilkins
and Ashley Hill. They each earned around $1000 a week at the start. |
1997 35 |
Sue met Aussie Kanck at an Australian Democrats meeting. In March, Sue became a client of Merlin in relation to Internet
access. Sue took on the job of Newsletter
Editor. She took what was basically a double-sided A4 sheet and turned into
an 8-page newsletter with high quality graphics. She also established a
second in charge for the newsletter (Jill Allen) so that the Newsletter is
till produced even though she is no longer working on it. Sue was keen to get involved in
everything. She sat on various A.D. Committees. However she could not go to
the numerous Protest Rallies and Marches that the A.D. attended because of
her health and the threat of inhaling cigarette smoke. She would ring around members to try
and get them to attend these rallies. Sue was pretty successful. Sue was also appointed the Federal
Campaign Director for the 1988 Federal Election. She also ran as a candidate
for the Seat of Adelaide in the State Election. She was pretty good at organising.
She ran workshops to make posters for herself and also for other candidates -
she did this from her own home. She also went out and put up election posters
at 6.00 am in the morning when there were no cigarette smokers around. As Campaign Director she attended
lots of Committee meetings and telephone hookups for simultaneous release of
campaign material. |
1998 36 |
She also volunteered
to be Campaign Manager for the Federal Election in 1998 but she wasn't here
for a lot of the time because she was in hospital or was interstate. She started off the Federal Campaign
Manager's job in late 1997 with a great deal of enthusiasm but this was
nipped in the bud because of her ill health. Due to
the disabilities and problems she had experienced since her asthma attack on
the 30th January. On the 1st of
February, she walked past cigarette smoke in Royal Adelaide Hospital (RAH)
car park but held her breath! Therefore she didn’t have an asthma attack. She had a major asthma attack caused by security guard smoking outside of Casualty at 2 am though. On the 21st of
February, she was discharged from the RAH. On the 4th of March,
she was readmitted to the RAH - continuing chest infection. On the 9th of March,
she was discharged from the RAH for home with an iv. On the 23rd of
March, Sue attends at the Accident and Emergency Department at the RAH -
visited Chest Clinic and walked past cigarette smoke. On the 17th of July,
readmitted to RAH. On the 28th of July,
she was discharged from RAH. On the 28th of
August, she had a Bronchoscopy and Endoscopy (Day Procedure) at RAH. On the 28th of
August, she suffered from Pneumothorax (lung collapse) as result of the
Bronchoscopy. On the 2nd of
September, she told a doctor of her concern of Pneumothorax and was walked
out on. On the 4th of September
she was admission through Thoracic Clinic, Royal Adelaide Hospital On the 7th of September
she was discharged from Ward S2, Royal Adelaide Hospital and transferred to
the Alfred Hospital, Prahran. She was
unable to live independently in her house at Wayville and had to move back to
live with her parents at Mount Waverley in Victoria. |
1999 37 |
|
2000 38 |
At the
time of her death in July 2000 Sue was working on a new awareness campaign
‘Where People Smoke Matters’. Sue saw
the problems of passive smoking as a violation of human rights. Her
strong belief was that smoking should only take place between consenting
adults. Sue was particularly concerned for the vulnerability of children. “When Sue decided… she could trust n
the belief that we would continue her work, she announced to Sue’s mother
Irene, that it was time, time for her to die.” “She said, ‘Anna, you know dying
isn’t difficult. In fact it’s rather easy. You will understand when it’s your
turn. It is beautiful.” “Sue asked to be comfortable,
reminded us to hold her and gently closed her eyes and drifted peacefully
from this world to the next, as always with dignity, grace and a cheeky
grin.” At the
2000 Carols by Candlelight Concert held in Jells Park in the City of Monash,
Victoria, Sue’s message was read to the audience of 16,000 and appeared in
the program. It was heartening to
find that no one was seen smoking in the audience and that children could
breathe easy. |
This is still being compiled if you have any information please contact me and send it to me, with the subject line - Sue's life info.
When
did she start helping AD? When had
she started helping the AD? Was this the first time – “Adelaide Branch of
the Australian Democrats – always helping out. 1994-1995 stuff stored at her
place for the Royal Adelaide Show”???
When
did the following happen????
RCH
good Friday appeal
Lots
of people thought Sue was a very gregarious, bubbly, friendly, strong willed,
enthusiastic, loving, caring, warm, helpful, organized, very extroverted and
very determined.
Stolen
a kiss from Prince Charles
Kidnapped
“Dave and Mabel”, two cockatoo TV stars
Rally
car driver
E-mailed
politicians about nurses’ conditions the week before her death
Organized a cystic
fibrosis fund-raising concert attended by unsuspecting middle aged women – the
event featured male strippers
Bibliography----